Each month Bluebell Wood share with us how much their services contribute to the lives of those that need them most.
Six-year-old Lilly from Rotherham is a happy, smiling girl who loves books, Disney characters and musicals; however, she was born with an unknown condition which throughout her early years has caused her many health problems.
Lilly was very poorly when she was born in 2006 and it wasn’t until she was two-years-old that she was finally diagnosed with 17q21.31, Microdeletion Syndrome, which has recently been given a proper name ‘Koolen Syndrome.’ Koolen Syndrome is a very rare chromosome condition that means for Lilly, the future is uncertain.
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